Awareness, Research, Support
Multiple system atrophy (MSA) is a progressive neurodegenerative disorder characterized by a combination of symptoms that affect both the autonomic nervous system (the part of the nervous system that controls involuntary action such as blood pressure or digestion)
and movement. The symptoms reflect the progressive loss of function and death of different types of nerve cells in the brain and spinal cord.
MSA is a rare disease, affecting potentially 15,000 to 50,000 Americans, including men and women and all racial groups. Symptoms tend to appear in a person’s 50s and advance rapidly over the course of 5 to 10 years, with progressive loss of motor function and
eventual confinement to bed. While some of the symptoms of MSA can be treated with medications, currently there are no drugs that are able to slow disease progression and there is no cure.
About our Organization:
We are a family who loves BSU football, waterskiing, snow skiing, running together and our faith in Jesus Christ. In the spring of 2014 our father was diagnosed with Multiple System Atrophy–a rare neurodegenerative disorder. Over the course of 6 years this disease took our father’s ability to participate in the things we love as it attacked his balance, speech, fine motor skills and autonomic systems. This disease eventually took our father’s life as he returned to his Heavenly Father on August 21st, 2020. We continue this nonprofit in memory of Kurt Williams and hope to raise awareness and money so others will have more support and treatment options in fighting Multiple System Atrophy. This non-profit 501 (c) association was founded to raise awareness and money for research. All of the money raised will be donated to the MSA Coalition.